Welcome to my spot on the internet.
I blog here about daily life in the new normal… Life after two concussions in 3 years. I’ve been pretty stable for about a year now, but I still deal with the effects of two vestibular disorders, Mal de Debarquement Syndrome (MdDS) and Secondary Endolymphatic Hydrops (SEH). And yes, people usually give me a confused look. They don’t mess with my daily life too much, but I still spend more time in the functional neurologist office getting re-set then I would like.
I do have a soft spot for functional neurology. I’ve spent well over 250+ hours at my clinic and I’m still amazed at what they have to offer.
The name retro·pulser comes from my time in Functional Neurology rehab and the terminology they use to describe my symptoms. One of my chronic ongoing symptoms was that when I tried to stand still I would slowly drift backwards, come forwards a bit, then drift backwards more. Rinse and Repeat. Eventually I would do a “controlled fall” to the ground.
The clinical lingo used to describe this movement disorder (not the falling into someone’s arms) is retropulsing in a smooth direction. The term retro, refers to the backwards movement and pulsing refers to the back and forth motion. Kind of like going 2 steps back and 1 step forward, except replace the word “step” with “falling”.
Thankfully it’s gotten a lot better and I don’t fall anymore. But most days if I’m tired, or haven’t done my exercises for a while, you’ll catch me swaying if I stand still!