Weekend Links & Updates

 Links:

Updates:

  • Still dealing with balance issues. I know in the world of brain problems it customary to have highs and lows. I’m still in the trough, just hoping I don’t slide down any more!
  • The good news is I think my immune system is finally back to normal and I’ve felt well for a few days now. The bad news is that my eyes and ears still aren’t working together and I feel like things are getting more fragile the longer I go off balance. Yesterday, I was able to spend most of the day up and working, but then by dinner time my face was flushed which is a sign that I’ve over done it. I made it to church today, so I think I recovered okay.
  • The other day while doing yoga, I was a couple minutes in and I all of a sudden heard “static” in my left ear. This freaked me out! I immediately laid down and it went away after a few minutes, but yeah, it creeped me out the rest of the day. Thankfully I have an appointment with the functional neurologist this week, so I will be asking them about it.

VEDA support group

Oops! I wrote this out and somehow never pushed published. Sorry for the delay in posting.

As I mentioned in the a recent post, I went to a VEDA (Vestibular Disorder Association) support group last week. I first found out about the support group the day after their September meeting and was disappointed to figure out that it would be another two months until the next meeting. At that point I was definitely intrigued by the thought of going to it, but a little part of me wondered if I “qualified” for support. But I put it on my calendar and was determined to try to go even if it was just to see what a support group was like. Then considering how neither my eyes nor my ears have been cooperating this past month I was starting to look forward to going to it. Ironically, the day of the support group was the worst day I’d had since July and I definitely needed encouragement.

I had never been to a support group before, so I was very curious to see what it was like. The group consisted of about 6 other women, a husband and a dad. We all took turns sharing a little about our story, then we went around again sharing news, progress, asking for advice, etc., and then we went around one more time to share something good that had happened. It all took about an hour and a half and was a great experience! There was a variety of stages, with some of the women being fairly stable and others being in the thick of having serious balance issues and just trying to get a diagnosis.

My favorite moment was when I shared what my issues where and I could say the terms Mal de Debarquement and Secondary Endolymphatic Hydrops and no one blinked. Instead of getting a blank stare or comments that they have no clue what I just said, the people nodded knowingly.

And it was fun to share a little bit about my favorite topic – Functional Neurology. 🙂

And, well, I am looking forward to our next meeting in January!

Weekend Links & Updates

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Looking out of Pittock Mansion’s music room.

Links:

  • VEDA Support Groups – Find one near you!
  • Brain Science Podcasts – Currently listening to number 120 with Dr. Taub. Much easier to understand what they are talking about now that I’ve read Norman Doidge’s book The Brain That Changes Itself.

Updates:

  • I had a Chemistry midterm last week and found out that I did decently well on it, so that was nice!
  • I went to my first VEDA  (Vestibular Disorder Association) support group (see link above) and it was a good experience. At least once I got there. I’ll write more about it on Wednesday.
  • My week has been crummy but things are finally looking up. I’ve been dealing with some sort of low grade cold that had settled in my bad ear making me feel low grade dizzy. I finally switched up my immune supplements and am feeling much better and my ear and lymph nodes are draining.
  • I felt good enough on Saturday to hang out with a friend of mine. We went to the Pittock mansion and then had some delicious Chai Tea afterwards. It was so refreshing to get out and do something tourist-y.

Functional Neurology progress (part 2)

So I finally got around to getting this uploaded.  As mentioned in this post, this exercise was conceived to help with the MdDS and my propensity to feel like I’m falling backwards when sitting on a slanted seat.

I haven’t done it for a few weeks now since I blew out my eye coordination watching Avengers and then had an ear infection. I’m going back to the functional neurologist tomorrow and I can’t wait. I’m turning into a hunch back from the way I lean forward to balance!

Weekend Links & Updates

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Updates:

  • Oh my goodness! On Thursday I realized I had completely missed my midweek posting. So sorry! Next week, the long awaited therapy video is coming.
  • After the week I’ve had it’s no wonder that I missed doing my blog post this week, Here’s how my weeks turned out. It started on Sunday staying up late helping with a friend’s family crisis. I had a Chemistry midterm Tuesday evening. And to top it all off, I’ve been under a deadline to try and draw up some house plans for some friends who are building a house. It’s been super fun (and I totally volunteered to do it!), but I have a tendency to lose track of time while I’m doing it and not take care of myself. Which is probably why I’m still sick and now I think I’m getting an ear infection. Argh.
  • The picture above is of my second project for my graphics design class. We had to create a monster out of an animal, a machine and a fruit. I think it turned out well! I used a shark, a swimming pool vacuum and a pineapple to create my lovely creature of the sea.
  • This weekend some of my family is heading to Corvallis to visit my brother. I’m staying home because the ear issue makes me really tired when I drive. And hopefully I’ll finish healing! I’m off to go watch a movie and soak my ear in garlic oil. Wish me luck!