Weekend Links & Updates

 Links:

Updates:

  • Well, first off, my women’s retreat was a success. So thankful for how well it went. I even felt like I was on vacation and since I did most of the running of it, I wasn’t sure if I would feel like I was working the whole time. Also, I didn’t get dizzy which was amazing. I did have one sort of “panic/stress out” moment and my “hydrops” ear filled up so I did have to watch my salt. BUT, I didn’t get dizzy and that’s the first time I’ve gotten ready for a trip that I haven’t gotten dizzy.
  • I wrote earlier this week about my eye going wonky thanks to watching Avengers: Age of Ultron. I think it was just way to much action for my brain. My right eye started feeling like it was digging into my nose and it made me really tired. Since starting the new exercises I’ve had so much more energy this week, so that’s been refreshing.
  • School is going really well. Taking chemistry and graphic design has proved to be the perfect mix between being out of the house, having homework, and stretching my brain and reestablishing new connections.
  • Today it was really windy and I went on a walk with my mom. By the end, as I was waiting to get the keys to open the door into the house, a huge gust hit and it felt like the house was moving on me. I then promptly took a forty minute nap!

Eye, eye, eyes

Ha! Well, I promised this week I would post a video as a sequel to this post. And I am posting a video. But it’s a different one then what I promised. 2 weekends ago I sat down to watch Avengers: Age of Ultron with my brothers on our large tv screen and it was not kind to my poor brain. After about an hour and a half I had had all I could take and over the weekend it became apparent that it had tweaked something so that my eyes were not working together. Argh. So yesterday I went to the functional neurologist and he took a quick video of my eyes to capture what was really going on.

In this video, my funcitonal neurologist and I are reviewing the recording of my eyes going up and down and then holding still. My left eye is on the right and you can see it pointing in towards my nose. Not normal.

My current exercise is to focusing on different points on a string that goes down and to my left. Hopefully this will do the trick!

Weekend Links & Updates

 Links:

Updates:

  • I’m on the home stretch of organizing our church’s first women’s retreat. This coming week I’ll be taking a break from blogging so I can devote time to finalizing all the details for the retreat next weekend.
  • This week I had my first chemistry test. I didn’t do great on it, but I’m focusing on it being  a victory to just be able to take a test!
  • I started watching Avengers: The Age of Ultron this evening with my family. Whew, those action movies are simply exhausting for my eyes when I watch them on our larger screen! I lasted for about 1 1/2 hours before my eyes gave out, so I guess we’ll finish it tomorrow!

Oops

I have a post planned for today, but I haven’t had a chance to upload the video of my latest functional neurology exercise to YouTube yet, and I may just not have time today to do it, as I’m not sure how long it will take. So I’ll be back with a post either later today or maybe I’ll just do it next week. Sorry!

Weekend Links & Updates

 

I’m slowly Kon-Mari-ing my clothing. Today I worked on shirts!

Links:

Updates:

  • My eyes are tired and not working together well today (which also means my balance is off). Yesterday I spent a lot of time painting, which being right handed I used my right hand to do most of the painting. I think that possibly messed stuff up. But I’m excited that I got most of my painting done! All summer I’ve been working towards getting the doors done.
  • I’m in my second week of Chemistry class. And the Graphic Design class. For that class, I get to design a monster created from a fruit, machine and animal. Should be fun!
  • Ha! Well, I’ve solved the mystery of why my eyes aren’t working well together. I wrote most of this Saturday morning (it’s not evening) and this afternoon I took a two hour nap and my nose starting filling up, so I think I’m coming down with a cold. Stuffed sinuses mean an unhappy ear which means whacked balance. Thankfully, I don’t have anything going on this weekend, so rest it is!

Functional Neurology progress (part 1)

I haven’t written much about functional neurology for awhile, mostly because there’s been nothing to report. Over the summer I daily did my optokinetic exercises that I talk about here, and they helped dramatically with feeling stable. But it never seemed to last for long. I could get away with skipping one day, but that was about it. And I never felt comfortable pushing myself too much with the exercises as they are strong medicine and if I wasn’t careful, I could seriously mess things up.

Eventually I got to the point where I wasn’t noticing any progress, but I wasn’t slipping back either. I made some notes of what I was still having problems with and a couple of weeks ago I had an appointment with my functional neurologist and we were able to talk about my lingering issues.

The number one issue that I remember talking about was my problem with sitting in any chair or bench that was sloped slightly backwards. You wouldn’t believe how many chairs are like that. Plus, most pews are – including my church’s. And they were very tiring! Depending on the angle of slope (wow, that sounds like math!) I could last between 30-60 minutes without my neck just aching. In fact, I went to a conference at a church and the pews were so sloped that after 30 minutes I had to find a chair in the way back that was next to the wall which I could then lean my head up against. And then I spent the rest of Friday evening and all day Saturday there. And I thanked God for that chair!

After some thought, the functional neurologist decided to try a new version of my exercise… and so far it’s working great! Next week, I’ll give more juicy details, but I’ve given you a picture as a teaser. Let’s just say I’m teasing them about getting me a chair that has racing stripes!

 

Weekend Links & Updates

Links:

Updates:

  • My shoulders and neck have been the sorest ever this week. I started a new exercise program this week and Monday and Tuesday were great. Wednesday, I got over ambitious and did WAY to much. By the end of the day everything had seized up. And I pulled a muscle or two in my shoulders. So that means a couple of days of taking it easy. Argh!
  • Whew, in addition to that, this week has been crazy but exciting. I started classes at our local community college this week. One is on graphic design and using photoshop. The other is. . . drumroll. . . General Chemistry. Both are classes I’ve always wanted to take and that I had resigned myself to never being able to learn in a classroom setting. So I’m thrilled that it seems to be going well.
  • I’m also in the throes of wrapping up the planning for our church’s first-ever women’s retreat. We have about 40 ladies coming and so far things are going smoothly, but it takes a lot of proactive planning. I’ve probably spent about 4 hours on it this week, so that combined with starting classes means it’s been busy.