My Adventures with Secondary Endolymphatic Hydrops: Going Gluten-free and the Neurotologist

Secondary Endolymphatic Hydrops

This is the fourth part of a series chronicling my experience with Secondary Endolymphatic Hydrops as a result of a concussion in September 2013.

Around the time Dr Z began suspecting I had Secondary Endolymphatic Hydrops, he said I should plan on visiting a neurotologist (a doctor who treats nerve disorders of the ear) to make sure there wasn’t anything else going on. It took a while to find one and then of course it took a while to actually get in, but eventually I had an appointment for the end of May 2014.
Sometime around the beginning of May, I found out that a friend’s mother had Meniere’s disease and was able to talk to her about it and find out what she did for her condition. She had found two things to be helpful. One was taking an expectorant to help fluids drain easily and the other thing that had helped her the most was going gluten-free.

At this point, I realized that if I went to this neurotologist and he suggested that I go gluten-free and then come back and see him in a month, I would be, erm, extremely irritated. So I decided to bite the bullet and go gluten free for the month before my appointment. I had little desire to go gluten free (really, who does?), but I was curious to see if it would help. Well, unfortunately, it did. I’m not convinced that it dramatically helped my ear, although it may have slightly, but what it did help was my brain. My brain cleared up dramatically and within three days I had more stamina than I had had since my accident the previous fall.
I also experimented with the expectorant, but after taking it consistently for three days and starting to developing a rash on my neck, I decided to discontinue it. Plus, it didn’t seem to make a difference during those three days.
At the end of May I saw the neurotologist. Meeting with him was good to check off the list, but there wasn’t much he could do. Of course, I secretly hoped he would suggest I had some easily solvable situation, but that wasn’t the case. He said it sounded like I had pre-Meniere’s and to continue with what I had been doing. This was disappointing, but not surprising.